Monday, January 30, 2006

Benefit

Some people have been asking if there is going to be a benefit for Christian at some point so I will pass on the information that I have so far...
As of right now, there will be a benefit for Christian on February 25th at 6:00PM at the Sweeney Hose Company, Inc. No. 7 which is located at 499 Zimmerman St. in North Tonawanda, NY 14120. Currently the plan is a spaghetti dinner with a chinese auction.
I am going to put a link on the side of this blog so that if anything changes or if there are any other benefits, you can find that information out there.
Any and all support is always appreciated.

Thursday, January 26, 2006

Update on counts

We received the results from Christians blood work today. His white count is 18.5 his hemoglobin is 10, platelets are 77 and ANC is 8880 so it has went up quite a bit and we are very pleased with this.As a result he is now off of two medicines.

Wednesday, January 25, 2006

MRI Results

Well the results are in and they are less than desirable. It would appear that the 3rd round of chemotherapy had little to no affect on the tumor. As a result, Christian will be starting his 4th round of chemo on Feb. 3rd. This will be his last round of chemo one way or another. If it works, great - schedule a second surgery, otherwise the plan will be to start radiation therapy.

A little disheartening for sure, but we will soldier on. Christian is home for now so his spirits are improving. We will continue to monitor his blood counts while continuing to find ways to lift his spirits even further.

Tuesday, January 24, 2006

home again

Christian is now home again he got out yesterday around 2:30. His counts are still low but his white count was 1.1 when we left so at least it went up a little. They sent him home on antibotics to help with that.And his ANC was still at zero so until it gets back up to 500 he will be on the antibotic.

Today he went for his MRI to see if the third round did the trick or not we should find out the results on Wednesday.When we do we will be sure to update the news.

Sunday, January 22, 2006

back in the hospital (cont.)

Christian is no longer running fevers but his blood work is back and showing that his white blood cell count is running low and his neutraphil count is also low. As a result it appears that Christian will be in the hospital until those counts come back up. For the experts, WBC is 0.6 and ANC is 0.0. Christian is also battling C-Diff which is a GI issue caused by antibiotics.

Saturday, January 21, 2006

He was still running fevers throughout the night and this morning so far. Right now we dont know anything else but when we do I will update.

Friday, January 20, 2006

back in the hospital

Hi everyone just to let you know Christian is back in the hospital we went in for a blood transfusion and platelets and he ended up getting a fever of 101.5 they arent sure yet if its from the transfusion or something else, so he will be in there for at least 48 hours and hopfully we will know more by Saturday. Ill update when we find out something.

Thursday, January 19, 2006

MRI update

We found out lastnight that Christian will be getting another MRI on Jan.24th to see if the third round worked enough for Dr Li to do his second surgery or if he will need another round. They have also started to reduce his steriods he gets it twice a day now instead of three times. He was on those to help with the swelling.

Thank you everyone for you prayers and support through this it means alot to us.

Wednesday, January 18, 2006

Christian is currently receiving speech and swallow therapy, physical therapy and music therapy at home. He is happy to be home but is battling low blood counts. We are currently waiting to find out where we go from here.

Tuesday, January 17, 2006



Christian was diagnosed with an anaplastic ependymoma (malignant brain tumor) back in October of 2005. Christian had just turned two when it all began. Even though our world was flipped upside down, we've somehow come to grips with it all and are making it through the day to day things. Please read his profile for the complete story.










Before we found out.