Photo Opp.

These are just a couple of pics that I like of Christian. These are his post-treatment pics and just look at all that hair!

Bye Bye Broviac

Christian is now wireless. He had his broviac removed on Thursday. He still has his G-Tube and will have it until he can eat better. We are excited about the broviac being out because now he can take a bath or swim and doesnt have to worry about infections being in there.
He is doing really well now. His speech is getting better everyday as well as his walking. He is acting like a happy little two year old and that also means he is getting into everything but thats OK.

Radiation

Christian is now finished with Radiation. YEA!!!!!!!!!!!!!!!!!!!!!!!!

Thank you to everyone at Roswell who helped to take care of Christian and made the process tolerable if not enjoyable.

This is the machine Christian had for treatments.
He would normally be laying down with his mask on.

Back In

Well you guessed it Christian is in once more for a infection. We do not know how long he will be in this time but hopefully he will get his line out this week and we wont have to worry about this problem any longer.

Home Again

Christian is home again they let him out Friday afternoon. He was sent home on a antibotic. Either next week or the week after he will be getting his main line out it has a few little bugs in there and his Dr wants it out sooner then later. We can not wait for that to happen.

Cornea Specialist

Well Christian saw a cornea specialist yesterday regarding some of the issues with his right eye. It has been made quite clear to us that the condition of his eye is at a very critical point and that we must take great care to insure that he will not need a cornea transplant. We are sure this is only the beginning of the ongoing care that is going to be needed to get his eye back to normal again.

Back In

Well he is in once again. The doctor called us at 2:00 this morning and said to bring him in that he had an infection in the broviac once more. So he will be in here till they get a negative culture so hopefully that will happen sooner then later so we can get outta here.

Little update

Christian is doing good. He has been spending this past week with his little brother he finally came back home. So this week has been extra crazy with Christian's therapies and dr appt. and getting to know Carter all over again. But at the same time it has been nice Christian has helped out with him and likes to hug and kiss him.

We are now down to 7 treatments so we are praying that this next week and half is going to go great.

Update

Christian went to the eye doctor today and he did say that it was looking a little better but he wants him to see a specialist to see if they want to do something different since the cornea isn't he specialty. So now we have to wait till next week to see them.

He also is down to 9 days of radiation so lets hope that everything will go as smoothly as it has so far.

He has also been walking. He started that over the weekend and has been doing better everyday. And his speech is getting better we are also working on swallowing and hopefully we can get him in for a swallow study so we will be able to tell if he is doing ok with it.

Miracle Makers

For all of you that live in the Buffalo area be sure to stop in at Tops Market and purchase a miracle makers balloon for Childrens Hospital Christians picture is on the balloon this year. Thanks in advance for helping out the hospital.