Friday, February 29, 2008

Visits

We have talked about this and feel that if anyone would like to come visit Christian that you do it ASAP. With the new medicine its making him pretty sleepy.And we do not know how much longer now we have. So please come visit him soon. Call and let me know when you would like. 206-8949

Thursday, February 28, 2008

pain med

We are now giving him the morphin every two hours if needed. Yesterday he was having a bad day with pain.

Wednesday, February 27, 2008

pain control

We have started him on morphin as of lastnight. He was starting to ask for pain meds before it was time for them so this is our next step and if this does not work he will have a pain patch. I HATE this!

Sunday, February 24, 2008

ihopecancer fundraiser

thank you for the new design...... http://www.cafepress.com/ihope/4905571

update

We are seeing something that we have not seen in a long time and that is Christians beautiful smile and laugh. he is still having shaking in his head but he has been in a happy mood lately of course some of it is due to there new puppy.Both boys love it and she loves them. We have gotten some negative talk over this puppy but to look at Christian and see him smile and having fun with her is all that matters. And the ones that unfortunately have been were we are know exactly what we are talking about.We don't know how much longer we will be able to see him like this. Carter as well loves her they run around and play all the time. Which is good because he will really need something when this nightmare happens.
We are so thankful that Christian is a stubborn little person because if he wasn't he probably would not be here today.
Again if you would like to visit please let us know,we are just asking that when you do that you keep things on the softer side for he does not like loud noise.

Friday, February 15, 2008

Party Pics



































update

First off we would like to thank the Tops on Union for giving us the cake for Christians last day of school party. The kids loved it! And Party City for letting us in early to get the last minute items.
It was bitter sweet yesterday knowing that it was his last day and knowing why. But it was nice to see how much everyone there loves and cares about him. If he feels up to it we will take him for short visits.
He is getting worse we can tell the difference between vacation lastmonth and now. He is more irritable and frustrated. He does not like loud noise anymore that being tv,people,toys. So we are asking if you come to visit to please keep it on the softer side.
I will add some photos of the party in a bit.

Monday, February 11, 2008

update

Christian had a pretty good weekend, he was in a happy mood yesterday. I think it had to do with his visitors :) This morning he was having the shaking problem again but through out the day it has seemed to get better.
This will more then likely be his last week in school. If anyone wants to visit with him please let us know and come to visit sooner then later.

Saturday, February 09, 2008

thank you

We wanted to thank everyone in the WV church family/school kids that have been sending Christian the cards and little gifts. He does love to get mail and this past week he has been one happy little boy. He loved the big valentine card and all of the cards/pictures from the school kids. We read every single one to him. He also loved the blanket.

Thursday, February 07, 2008

When it rains it pours

So this week has not been a good one for us, over the weekend we thought the brakes went out on the van, turns out they were fine but needed a battery. The next day Darren goes out to go to the drug store and the van wont move the transmission went out on it on. So we have not had to much luck with the van.
We have all had appointments this week, Christian eye appts to keep an eye on the cornea and Darren and I a follow up however they said that I know have diabeties on top of everything else.
He is not sleeping well at all so in return we are not either. We have tried some meds but they did not seem to help so we will see if we can try something else.
He seems to be in a better mood today, maybe thats because he finally took a poop yesterday it had been a week since that has happened so we had to give him something for that as well. The dr said it will be harder for him to go now and take longer but we need to keep him cleaned out.

Sunday, February 03, 2008

Thank You

We would like to thank everyone that was involved with the benefit, and everyone that came. It meant a lot to us to look out and see so many people there to help our family. Words can not be said for how grateful we are to everyone. So again Thank You!

Friday, February 01, 2008

benefit

If anyone comes to the benefit please come up and say hi to us.