We got the pathology report back this evening and it is indeed scar tissue! They have started taking him off meds and lowering his O2 today to get ready for the vent coming out in the morning. Now we are praying that he will be able to handle that and that his vocal cord is working now. He did kick his left leg tonight when they tried putting his foot support on. So we know he can at least move that. I will try to update more as things happen.

Christian is doing better today his stats are staying at least above 90. They took him off on of the sedation meds to see if waking him up a bit will help. He is awake now watching some cartoons and when he sees something he likes he makes me look with him. He does look good today but they arent sure if he will get off the vent on monday it all depends on how he handles everything.
On the other hand we are missing Carter wishing we could give him hugs and kisses.
We also met another family from NY with the same tumor as Christian among talking they have alot in common his name is Johnny please keep him and his family in ur prayers while they are here.
Today is a better day for us seeing Christian awake and somewhat himself. He still isn moving his arm or leg so hopefully in time that will change as well. Thanks for all the prayers I believe they are working!

Update

This morning was not a good one Christians O2 levels kept dropping and they did not know why he sounded good, looked good, They gave him some medicine to help him pee so that if there was fluid it would help that to. They turned him up to 100 % and have started going down now he is at 50 on the O2.
It was very scary to be there and watch as the nurse looked worried. We are praying that things will start moving in the right direction.

Update

Christian is now on the breathing machine around 11am today he was having a hard time doing it on his own. We are not sure when they will try to take him off again they have given him high dose of steroids to help with the swelling so maybe that will help him out a little. We can not wait for him to recover from this and to hear what exactly it was. Thanks for all the prayers

Post-Surgery

Christian is now in the ICU recovering from surgery. The surgery went well and all of the tissue in question was removed. The reason I say tissue is because the Surgeon believes that what he removed was scar tissue possibly caused by a previous surgery or radiation. Hopefully Christian will be moved to a regular room by Wednesday, depending on how well he recovers in the ICU. The current concerns are his breathing and some mobility issues on his left side. Thank you to everyone for your continued prayers. We will continue to update the site as we learn more and get a chance on a computer.

Christians surgery

Christian is having surgery in the morning and after he recovers from that he will be having 6 weeks of radiation here at St Jude. So please everyone pray that this surgery and doctor will be good. Ill update when we get the chance to get on the internet again. Right now we are staying at a St jude house and dont have internet access all the time.

I finally caught one!!!! It was sooo much fun!

Fishing

Here is Christian and Heather waiting for the fish to bite! Nothing this day but maybe today.

Little update

First off I wanted to say that we made it to WV. And also we talked with Dr Merchant from St Judes and he wants to meet with us on Monday to go over Christians past radiation records to see if he is able to get another dose after a sugery to remove the tumor. We have not made up our minds as to where we will be getting this all done at. We want to hear what all the doctors say and then make our decision. Please keep Christian and the family in ur prayers while we travel down to Memphis and back.
I will update the site as we find out information or decide what we are going to do.

Awareness Product

I wanted to add this link my sister had a design made up for Christian.

http://www.cafepress.com/ihope/2835919

Bad News

We got the phone call today that we did not want to hear, The area they were concerned with is in fact a tumor. The doctor said we could just watch it, surgery or gamma knife. Im not sure as to what road we are taking just yet since we have just found out this new information. We are still waiting to hear from the doctor in Memphis and then maybe we will know which direction to take. The NS here thinks surgery it the way to go right now. But as I have said we are waiting before we decide which direction to take. We also have BT clinic next week so maybe they will give us more information.
Please say an extra prayer for our little guy.

MRI

Chrisitan had his mri on Monday his doctor seen an area that is concerning it could be 1 of 2 things ,1 the tumor is back 2 its effects from radiation. We now have to wait until they discuss his case in Tumor Board with in the next few weeks then hopefully we will know more or at least which way we are going. So we are asking for those prayers that this is just side effects from radiation and not tumor.
We will post when we find anything new out.

Here are my cuties all ready for easter!