Christians surgery

Christian is having surgery in the morning and after he recovers from that he will be having 6 weeks of radiation here at St Jude. So please everyone pray that this surgery and doctor will be good. Ill update when we get the chance to get on the internet again. Right now we are staying at a St jude house and dont have internet access all the time.

I finally caught one!!!! It was sooo much fun!

Fishing

Here is Christian and Heather waiting for the fish to bite! Nothing this day but maybe today.

Little update

First off I wanted to say that we made it to WV. And also we talked with Dr Merchant from St Judes and he wants to meet with us on Monday to go over Christians past radiation records to see if he is able to get another dose after a sugery to remove the tumor. We have not made up our minds as to where we will be getting this all done at. We want to hear what all the doctors say and then make our decision. Please keep Christian and the family in ur prayers while we travel down to Memphis and back.
I will update the site as we find out information or decide what we are going to do.

Awareness Product

I wanted to add this link my sister had a design made up for Christian.

http://www.cafepress.com/ihope/2835919

Bad News

We got the phone call today that we did not want to hear, The area they were concerned with is in fact a tumor. The doctor said we could just watch it, surgery or gamma knife. Im not sure as to what road we are taking just yet since we have just found out this new information. We are still waiting to hear from the doctor in Memphis and then maybe we will know which direction to take. The NS here thinks surgery it the way to go right now. But as I have said we are waiting before we decide which direction to take. We also have BT clinic next week so maybe they will give us more information.
Please say an extra prayer for our little guy.

MRI

Chrisitan had his mri on Monday his doctor seen an area that is concerning it could be 1 of 2 things ,1 the tumor is back 2 its effects from radiation. We now have to wait until they discuss his case in Tumor Board with in the next few weeks then hopefully we will know more or at least which way we are going. So we are asking for those prayers that this is just side effects from radiation and not tumor.
We will post when we find anything new out.

Here are my cuties all ready for easter!

MRI

I wanted to remind everyone that Christians MRI is for Monday the 2nd. This one is brain/spine. Please keep him in your thoughts and prayers. I will update with the results as soon as we know.

pics of eye surgery

Here is Christian before surgery, the day of and two days later with his jello face.

Eye Surgery

Christian finally had the eye surgery this morning. Everything went well she did a temporary stitch on the side by his nose and a permanent by his ear. We are hoping this will help clear up his cornea and have his eye better. Other then that he seems to be doing pretty good still a little sleepy, and enjoying the pile of suckers the doctor gave him. Hopefully the temp stitch can come out this summer.
Thanks for the prayers

Eye Surgery

Is scheduled for Tuesday the 20th. He got medical clearence from the ped today so now its up to the dr at the hospital on Tuesday. Hopefully this time around this will be done.

Eye Surgery

Is now cancelled. When he went in today for his medical clearance they found out he has a ear infection and had a temp of 100 so the doctor does not feel comfortable putting him out for the surgery. So now it is for the 20th. So lets hope he isnt sick!!!!

Eye Surgery

We finally have a date it is set for March 5th. So now we have to take him to the ped. for a medical clearance report and he is set to go. I only hope that this will be the trick to make his eye get better instead of getting worse. So please say an extra prayer for him.

Hearing test/eye appointments

Christian had a hearing test done yesterday to check his left side and as of right now it looks pretty good. They want to do another one in about 6 months.

As for the eye dr he say the ophthalmologist this morning and he is now wanting him to wear a patch for 3 hours everyday until he goes back in 3 months. So now we have to figure out how to keep it on him.
The Cornea dr wants to do the stitch surgery after all she feels that he eye is getting worse everytime we go in. So that will probally be happening in the next few weeks. This is so the contact will stay in longer and hopefully keep more moisture in.
As soon we we know more we will update everyone.

Sabres Game

Hi everyone Christian and the family went to the sabres game lastnight and had lots of fun. Christian played with the little kids and enjoyed the game. Here are a few pics of our night. They played the Oilers and won 2-1 in over time.

Update

Latest update is we still are no further with the nerve graft issues then we were a few weeks ago. We did talk to his surgeon but he wants to wait until after his next scan in April and discuss it then.
On another note Christian is out of school for a couple of days with a virus. So hopefully the meds will kick in and make him feel better. It will be good when winter is over and all the kids at school arent sick!

Possible Surgery

The Dr's have now thrown out the idea of doing a nerve graft on Christian if it does not come back after a year to 18months post surgery. March 22nd will make 12months. After that they will not be able to do it for they are afraid the nerve will be dead by then.
We have talked with a few other doctors to get there opinion and so far everyone is agreeing that we should have it done. The eye dr says it should help with closing the eye which in return would hopefully help the problems we are trying to fix now.
I feel 50/50 on this yes I would love to see his beautiful smile again but I dont want him to have to go through anymore. We are still waiting to talk with his NS Dr Li so we can ask some more questions. So for now we wanted everyone to know what is going on so far and when we know more we will update again.

MRI Results

We just got home from brain tumor clinic today and with good news all around they said his scan look good, they arent worried about the artery right now they will take a closer look at it in 3 months at his next MRI.
The dentist also said his teeth are also fine infact they are suppose to be shorter like they are now and that it wont effect his adult teeth.

Thanks for the prayers

MRI

It looks like we wont be hearing anything about his MRI that was today for all of the doctors appear to be off. So if we do find out something I will repost the results.

On another hand we got home today and noticed Christians top front teeth were broken right in half. They do tell us everytime that this could happen, but the dr today said they type he was using shouldnt be a problem(what the put him to sleep with). So now we are trying to find out what we are suppose to do about this new problem. But with everyone off today its making things a little difficult. So hopefully sooner then later we will get answers to both.

Thanks for the prayers