Photo Opp.

These are just a couple of pics that I like of Christian. These are his post-treatment pics and just look at all that hair!

Bye Bye Broviac

Christian is now wireless. He had his broviac removed on Thursday. He still has his G-Tube and will have it until he can eat better. We are excited about the broviac being out because now he can take a bath or swim and doesnt have to worry about infections being in there.
He is doing really well now. His speech is getting better everyday as well as his walking. He is acting like a happy little two year old and that also means he is getting into everything but thats OK.

Radiation

Christian is now finished with Radiation. YEA!!!!!!!!!!!!!!!!!!!!!!!!

Thank you to everyone at Roswell who helped to take care of Christian and made the process tolerable if not enjoyable.

This is the machine Christian had for treatments.
He would normally be laying down with his mask on.

Back In

Well you guessed it Christian is in once more for a infection. We do not know how long he will be in this time but hopefully he will get his line out this week and we wont have to worry about this problem any longer.

Home Again

Christian is home again they let him out Friday afternoon. He was sent home on a antibotic. Either next week or the week after he will be getting his main line out it has a few little bugs in there and his Dr wants it out sooner then later. We can not wait for that to happen.

Cornea Specialist

Well Christian saw a cornea specialist yesterday regarding some of the issues with his right eye. It has been made quite clear to us that the condition of his eye is at a very critical point and that we must take great care to insure that he will not need a cornea transplant. We are sure this is only the beginning of the ongoing care that is going to be needed to get his eye back to normal again.

Back In

Well he is in once again. The doctor called us at 2:00 this morning and said to bring him in that he had an infection in the broviac once more. So he will be in here till they get a negative culture so hopefully that will happen sooner then later so we can get outta here.

Little update

Christian is doing good. He has been spending this past week with his little brother he finally came back home. So this week has been extra crazy with Christian's therapies and dr appt. and getting to know Carter all over again. But at the same time it has been nice Christian has helped out with him and likes to hug and kiss him.

We are now down to 7 treatments so we are praying that this next week and half is going to go great.

Update

Christian went to the eye doctor today and he did say that it was looking a little better but he wants him to see a specialist to see if they want to do something different since the cornea isn't he specialty. So now we have to wait till next week to see them.

He also is down to 9 days of radiation so lets hope that everything will go as smoothly as it has so far.

He has also been walking. He started that over the weekend and has been doing better everyday. And his speech is getting better we are also working on swallowing and hopefully we can get him in for a swallow study so we will be able to tell if he is doing ok with it.

Miracle Makers

For all of you that live in the Buffalo area be sure to stop in at Tops Market and purchase a miracle makers balloon for Childrens Hospital Christians picture is on the balloon this year. Thanks in advance for helping out the hospital.

Little update

Christian has now made it half way through radiation and so far so good. He will go to the eye doctor on Wed. so hopefully we will get good news on his eye. He is still in therapy and is getting better everyday.

Home Again

Christian is home again. They sent him home on antibotics. He is doing well and is excited to be back home.

Back In

Christian is back in the hospital. He was admitted on Saturday with an infection in his main line. They have started him on antibotics so hopefully with in the next few days he will get to go home. He did have a positive culture again today so we arent sure if that will add on his stay time or not. We are hoping not but we will see. He is in good spirits considering where he is. He is still able to get his radiation thank god we did not want to put that off. We will update more when we find out something.

updating

Christian has made it through two weeks of radiation now and so far so good. He is in a good mood when we get there but when we leave he is not. But that is understandable at this point.

He has been walking more with our help so hopefully soon he will be doing it alone.

He goes monday to the eye dr so we will see what he has to say this time around.

Have good weekend!

Update

Christian has made it through his first week of radiation. He now is having bad tantrums and everyone is telling us it could be a number of things. All I know is I cant wait for this to be over its so hard on him but we are wore out ourselves.
His next MRI is scheduled to be in July so please keep the prayers that it will be a clear one.

This is the latest picture of Christian with Carter.

Christian is doing ok so far. Right now he has a ear infection which means we made our weekly trip to the hospital. Today was his 3rd day of radiation so only 31 more to go.

Radiation

Christian started his radiation on May 4th and so far he is doing ok with it. The first day he was a little cranky when he was waking up but Friday he did better he was nice and calm when I went to see him.
He also got to visit with his baby brother for a the day but he seems be happier to have us to hisself again.

Little update

Hi everyone sorry we havent updated in awhile but been a little busy. Christian was taken to the hospital on the 23rd for a fever and only had to stay till monday evening. He only had the one fever at home but his Dr. wanted to be safe with everything being so close out of surgery.

He will start his radiation on May 3rd I believe so hopefully we can get through these next 6 to 7 weeks and then let him have a normal summer.
He is starting PT again this week and hopefully OT and speech will be soon. He is crawling at this point and is saying a few words so this is at least headed in the right direction.

This is the quilt that a group called love quilts made for Christian and he took it to memphis with him and we would like to thank all the people that was involved in making this it is beautiful.

And one of him and his lil bro Carter

We will update when more later.

God Bless You Everyone

Home Again

Christian has been released once again. We brought him home Saturday morning and he seems to be happy we did. He was trying to crawl through the house and has been playing ever since. His mood seems to be better except when he has to be tied down for some meds.

He has a hearing test today. Appointment at Roswell Tuesday for his markings for the radiation, and Wednesday he will see and eye doc in the morning and BT Clinic in the afternoon (brain tumor) so for the next few days we will be busy. Hopefully within the next few weeks we will be able to get him started on the radiation.

We will update more later on.

Back In

Christian is back in the hospital. We brought him in on Monday night a little after getting home with a fever. Today they have told us we will be at least 4 more days. Hopefully they will get the infection gone sooner then later so we can get back home to relax for a while. We will update as soon as we know more.