Tuesday, October 28, 2008

Prayers Needed

For the Meyers family, there son Christian passed away on sunday. Please keep his family in your thoughts and prayers during this difficult time. His mom is also battling cancer so please say an extra prayer for her.
Thank you

Wednesday, October 22, 2008

carties pics










missing him


As the holidays get closer im missing Christian even more. I wish he was here so I could hug, kiss and hold him. A big part of our family is missing and no day will ever be the same. As I sit and watch Carter playing in the pjs that Christian wore last year it makes me sad and now that Carter is starting to use the potty it makes me realize that Christian would have done that two years ago if he would not have gotten sick.

I know that they are two different children but when u lose one of them this is just how a parent feels about things, and for all the ones that are reading this they understand what im saying.


Ive been down myself I hurt something in my hip area and have not been able to do to much for over a week. So that gives a lot of time to sit and think and miss him.I am starting to feel a little better now but I cant wait to be fully recovered.


We went out on Sunday and took some pictures of Carter for his 3rd bday in Nov. I honestly dont know what I would do with out him. He has been a blessing for us something to get up for everymorning. We are getting to know him now and that makes me sad that we missed so much of his life but we had to be with Christian.


Anyways ill add a couple of pics of Cartie in a new message....


Monday, October 13, 2008

3 years

It was 3 years ago today that our lives forever changed. Our first stop was to the peds office and from there to Children's to the ER, we were expecting to hear news about his tonsils or something to do with ENT. But when Darren and Christian came back to the room where I was waiting and he said that he thinks there was something on his brain I did not want to believe it, I shoved it off to the fall that he had a few months earlier and that he was going to be just fine.

A few minutes later two doctors came into that tiny room that we were waiting with sad looks on there face. The woman doctor came closer to us and said that the CT showed there was a spot on Christians brain and they believed it was a tumor. No parent wants to hear this about there baby, and of course we were in shock even when the NS came in to talk to us and let us know that Christian would need surgery, we left the er and went to ICU that was the longest and most confusing night.

So this explained why he was so sick for a month and why he wasn't walking. But again how could this happen to a beautiful 2 year old. I remember I was wearing a teal sweater and was 7and half months pregnant.And seeing my beautiful Christian so sick and feeling so helpless. That was the day that we entered in the world of Brain Tumors and doctors,surgeries,chemo's,radiation.

Today is a day I will never forget. I miss you my sweet sweet Christian and will love you forever.

Sunday, October 12, 2008

Prayers for Owens family

I wanted to ask everyone to say an extra prayer for Owen Piebers family he earned his wings this week. Jen I hope that you are doing ok and please know that im here for you whenever you need me.
Hugs to you!

Sunday, October 05, 2008

Happy 5th Birthday in Heaven Christian 10-03




Here are a few pictures of us honoring Christians birthday, we went to the pumpkin farm to honor him,we have taken Christian there every year since he was two weeks old so we thought what better way then that.
We miss you our sweet boy.
Ive posted this a few days late but things have been crazy around here.

Tuesday, September 30, 2008


We went out to Chilis Monday night to support St Jude and Carter colored a pepper in memory of his brother.

Monday, September 29, 2008

Please read

Have you seen a gold ribbon? Do you know what it stands for? Have you heard that September is Childhood Cancer Awareness Month?
I am the mother of a child living with brain cancer, a diffuse intrinsic pontine glioma. I finished breast cancer treatment on July 10th and flew from Michigan to West Virginia that day for the funeral of another child...a beautiful fourteen year old girl who lost her battle with the same rare brain cancer.
Everywhere I look I see pink ribbons, I feel gratefulness...and I feel anguish. According to an article published in the New York Times on September 22, 2008, as a result of advances in treatment "...98 percent of women with early-stage [breast] cancers survive at least five years.." Why is this true? Because we have banded together to raise awareness and funding for our mothers, our sisters, our aunts, and our daughters. Our children who are living with-and dying from-cancer desperately need that same attention...and funding.
Helen Jonsen, Forbes.com senior editor and mother of a child who recently underwent treatment for osteosarcoma, stated in a September 12th article, "Cancer is the No. 1 disease killer of children in the U.S. ...We tend to talk about it in hushed tones instead of screaming for help. But scream we should." The article goes on to say, "The funding for pediatric cancer clinical trials has gone down every year since 2003, and is currently $26.4 million. By comparison, NCI funding for AIDS research was $254 million in 2006; funding for breast cancer topped $584 million the same year."
September 13th was our nation's first Childhood Cancer Awareness Day. When I didn't see anything about it in the news-but I did hear about National Talk Like a Pirate Day a couple days later, I made some calls to our local news stations. For some reason I can't get the words of one of the story editors out of my mind. "So...what's your event?" Later."Pitch me a story."

Let's see...ummmm...would the deaths of 2,300 children each year be newsworthy? What about the diagnosis of 46 children each and every school day? What about the fact that only 2/3 of children diagnosed with cancer will survive? We could move on to funding. Is it newsworthy that for every dollar spent on a patient with prostate cancer, less than 20 cents is spent on a child with cancer...or that a patient with breast cancer has triple the research resource allocated to her when compared to a child?

When I mentioned that Child Cancer Awareness Day--and month--are a national thing, I was told, 'We put local news first.' Okay...I can handle that. A local event...I have a list of them. The shock of a family receiving a breast cancer diagnosis on an October Monday afternoon, and taking their six-year-old to the Emergency Room on Thursday only to be told, "There is a large area of swelling in the brainstem; we suspect a mass." We could always throw in the comic relief of the words, "My mom has a mass!" coming out of the mouth on that happy little face.

How about a mother leaving the Pediatric Intensive Care Unit late that night to go home because she knows she needs to get a good night's sleep before attending an Interdisciplinary Clinic early the next morning...where her own treatment plan will be recommended? How about a local pastor, husband, and father being given the specifics of his son's grim diagnosis and prognosis in one hospital while waiting for news of the specifics of his wife's diagnosis and prognosis from the Cancer Center at another hospital?

How about an 11-year-old boy and an 8-year-old girl being abruptly pulled out of the routine world of reading, writing, arithmetic, language, history and science as taught to them by Mom at home...and being thrown into a class on brain anatomy and abnormalities (specifically their little brother's) taught appropriately and compassionately by an MSU med school professor...who also happens to be their brother's new oncologist?

How about a six-year-old who finds himself no longer able to play the piano, the violin, or the cello because he has lost the strength on the left side of his body?
How about a mother waking up in her child's hospital room one morning, showering, and walking downstairs for her lumpectomy...while her husband takes over the duties of hospital parent and waits anxiously in his son's room for news of his wife's surgery?

Looking for a human interest story? Try the same mother moving back into the hospital early on a Sunday morning four days later so that her husband, a pastor, can be in church...only to watch in disbelief as her fun-loving, active six-year-old--determined not to have an accident--becomes too weak to sit up to go to the bathroom on a bedside commode. What about the willingness of that little boy to allow the nurses to help him even with the most private of things...because he knows his mother is recovering from surgery and he is concerned for her well-being?

Not sensational enough? Let's fastforward to Saturday, November 24th, 2007...two days after Thanksgiving. A mother sits in a hospital room with her sleeping son. She ends a phone call because she hears an alarm she has never heard before, an alarm letting the nurses know that her son's oxygen level is dropping. Soon the room is full, and it is determined that the child is disoriented, then staring ahead...completely unresponsive. Somehow everyone moves with the child on that bed through the hallways to the Pediatric Intensive Care Unit where the intensivist begins the work of saving a precious life. Aside, the question parents never want to hear, though one that must be asked, "Given his prognosis-do you want us to resuscitate him, if necessary?" The father, who has just arrived, breaks down in the unbelievable stress of the moment. The mother realizes the urgency of the situation, pushes emotions aside, and asks, 'Do we know what is happening?' The answer is no. 'Then, yes, we want you to do everything you can for him.' She stands at the foot of the bed with one of her son's oncologists. Together, they watch the PICU team work...with purpose...like a machine. The mother steps outside the room only when the child is intubated. The drama continues, as the entire department revolves around that one room...that one little boy.... The eyes of those outside the room...every nurse, every resident, every doctor...are looking in the same direction. The parents sign permissions as they are handed to them, and the work goes on. Everything seems to be happening in slow motion. Finally, the intensivist approaches. The child is critical, but stable...on life support....

I have just highlighted the first month of our new life in the pediatric cancer world. I am aware of five precious children who died this week--within five days--as a result of just one type of rare cancerous brain tumor, the same as my son's. Skyler...Adam...Mara... Brynne... and Lauren. They belonged to all of us. What will it take for people outside of the childhood cancer community to notice what is happening to our children? What will it take for everyone to understand the urgency of the situation? What will it take for the federal, state and local governments to finally engage in the fight? Will it be the cancer diagnosis of a celebrity's child or the child of a political leader? Will it be the death of a child belonging to someone in the media? Will it be your child?
Please, join the effort to raise childhood cancer awareness. Show your support by wearing a gold ribbon, and by making the issue an important topic of conversation. Distribute copies of this letter in your place of employment, in your place of worship, and in your community. Contact government officials, and express your concern.
A decade ago, we noticed a person wearing a pink ribbon on a t-shirt or lapel. It didn't take long for pink ribbons to raise breast cancer awareness in the public eye, and to mobilize our society to action. I hope that in 10 years gold ribbons will be as common as pink ribbons...and that the survival rates for pediatric cancers will be comparable to those for breast cancer. With your help, it will happen...one gold ribbon at a time.
With Hope for Our Children,
Sandy Smith Breast Cancer Survivor & Mother of a Child who is Battling Brain Cancerhttp://www.caringbridge/.org/visit/aws

Go to Chili's for dinner tonight!!!

Eat at Chili’s on Monday, Sept. 29, when Chili’s will donate 100 percent of profits from participating restaurant sales to St. Jude.

Tuesday, September 23, 2008

6 months

Today is the 6 month mark since Christian passed away. Its hard to believe that its been that long already, and yet so much has changed since that day. There is not a moment that goes by that im not thinking, missing and wishing he was here with us. 

Life just isnt the same since  you left us my sweet boy. The day you left us was the day that we were born again. There will always be something missing in our lives, we miss seeing that beautiful half smile, and those big brown eyes. But most of all hearing those I love you's and kisses and hugs. 

Carter is taking after you now he likes to wear lipstick...its hard to see but at the same it reminds me of you. 
We love you our sweet Christian and you will never be forgotten.


Tuesday, September 16, 2008

updating

So its been a little while since ive last posted....things here are about the same. We all have been sick off and on. We have been doing home improvement projects to try and stay busy. But in reality no matter how much work you do you never stop thinking about the loss that has happened.
Christians birthday is quickly approaching and to be honest I have no clue how im going to get through it,just thinking about it is making me upset. And thats just the start of the next few months, with his bday, and holidays I just dont know how I/we are going to do it. I know we still have Carter and we will have to be strong and do things for him but I honestly dont know how.

There has been heartache in my old home town, another mother has lost a child it was not from cancer but an accident but its still the same, its very sad to hear about that and im sorry that it happened but now I worry for his mother and how she will do. I know our losses were different but its still the same and so im asking for everyone to say a prayer for the Willis family and that they will make it through this rough time.
You really find out who your true friends are in times like this. And I am so thankful for the ones that I have and I hope they know who im talking about.
I would also like to ask that you would saya prayer for Mary and Alex, they are grandma and son to one of my best friends. Mary is in the hospital and not sure whats wrong exactly and dont know if her heart is strong enough for a sugery. Alex is having some problems and his mom is very worried about him, Also my grandma Bessie has told me that they think she now has a tumor under her eye. I dont know how much more of this cancer crap one person can take.
I guess im done rambling for now......

Tuesday, August 26, 2008

Awareness Shirts

Another Angels mom has made a tshirt design for Septembers childhood awareness month here is the link to shirts. http://www.cafepress.com/teamunite

Thursday, August 21, 2008

Sad

School time is right around the corner and as I see the buses drive by I cant help but get upset and miss Christian even more. He is suppose to be getting on the bus and going to kindergarten this year and after that he is suppose to turn 5 in Oct. and go trick or treating, be at his brothers bday party, have thanksgiving and christmas. But unfortunately he is not here to do all of these things and it makes me very sad. I know that he is here in spirit but its not the same as being able to see that beautiful smile he has when he is excited or happy.
I am hoping that the next few months will go by quickly, I know that we still have Carter and I'm going to try and make this time for him special but I just don't know how I'm going to get through it.

Tuesday, July 22, 2008

updating




Sorry Ive not updated in awhile but Ive been busy getting some things done. We are back from WV got back about a week ago. John Henry Days went OK I took close to 1000 pics for them. We also went to Cass Scenic Railroad took a ride on a train up a mountain. Carter loved it we had fun but at the same time it was sad for me because we had promised to take Christian there someday and never made it. I know that he was with us but it wasn't the same.


There has been a few different times that we have had some fun and it doesn't feel right afterwards. I am missing Christian more and more these days. It was hard coming back home this time as I was putting things away I ran across Christians certificate from school and an album of course I loved to see it but at the same time I was heart broken. he was suppose to move on this year from pre-k. Its been just about 4 months and what they say is true the longer it goes the harder it gets.


Saturday, July 05, 2008

just updating

The 4th went ok as usual Iwas wishing that Christian was here enjoying the day with us. Carter had a good time up until the loud fireworks went off and then he ran to his nana and said no more no more...how ever he did like the quiet ones.

I like being in WV but I am missing home now. It will be nice to go back and have Chrissy with us. She has gotten big over the past few months but Carter and her play all day and its cute to watch. Hopefully she will be a nice distraction and I will enjoy what summer there is.

Hope everyone has a nice holiday.

My sister a friend and I will be going to see grandma in a couple days it will be nice to see how she is doing and to spend sometime with her.

Wednesday, July 02, 2008

prayers please/update

Everywhere I look I see something that reminds me of you Christian. The past few days have been rough for me, when I see how much fun Carter is having here at nan and pappaws I think Christian would be having such a great time here as well, riding the truck,swimming and just being with them. My heart breaks more and more each day. Sometimes its all I can do to get through a day.
I also want to ask for prayers for a family who is going to be going through this hell that we are unfortunately, his name is Christian as well and his family is going through hard times the mom is going through cancer herself right now so please keep them in your thoughts and prayers.

I love you Christian William now and forever

Monday, June 23, 2008

For my sweet Christian

Its been three months today since you left me Christian and time is only getting harder. I hate not being able to hold you and touch you and hear your little laugh. I feel alone now without you,I have Carter but not you and now im broken. I would give anything in this world to have you back with me. No matter where I am Wv or home im all alone. Sure there are a couple good friends that have been there for me and listen to me when I need it or just whatever the case may be and I am so grateful for them, being away I miss them but im around support now and I dont always feel that there, I dont know maybe thats why I feel so lonely sometimes.
There is know worse pain then losing you my sweet Christian and any parent that is reading this that has lost a child knows exactly how it feels to be with out the one person you love most in this world.
I hate it that cancer has taken you away and that I only got to have 4 short years with you. Those were great years because I did have you but at the same time its not fair that, thats all you had.
Its hard when people look at me funny trying to find the right words to say or they feel awkard because im there, and what would be nice is if they would tell me something about you that I might know or even talk about something I do know. Stories is the one way I can keep here and alive.
Christian there is not a second that im not thinking of you and missing you...

Twinkle Twinkle Twinkle STARRRRR!!!!

I love you now and forever my sweet angel

Sunday, June 22, 2008

Relay for life








Last night was the 1st relay for life for summers county. I had debated on going or not and eventually I did. The first while was going ok Carter wanted to play games and look around. But when they had the survivors line up I lost it so the whole time they were doing there lap I was happy for them but heartbroken that Christian was not there to walk with them. I do not even really remember walking the caregivers lap for I was crying during that as well.
It has been 3 months now and sometimes it feels like a lifetime ago and others like it was yesterday.
Grandma got to go home Saturday and is doing well.

Friday, June 20, 2008

grandma/update

Sorry its taken a few days to update you all we just got to mom and dads and im able to get online now. Grandma had her surgery on Tuesday and things went well the doctor said he believes he got everything she had an MRI Wednesday but right now i dont know the results. She was walking around, eating and looked good on Wed. If she remains well she might get to go home this weekend. I know that Christian was watching over her and making sure things went ok. I have to say though it was harder on me then I thought. When I went back to see her before surgery it reminded me of being in that same spot with Christian and the waiting all day. I am more then relieved that things are ok for her. Thank you to everyone for you prayers once again.


As I said we have made it to mom and dads. After a long week of running to the hospital im looking forward to resting for awhile. Carter has been in the yard riding his new 4wheeler they got him and keeps saying that he brokie it :) Of course he loves watching the choo choo's when they go by and is loving that he is around Chrissy and Dutch again. Dutch is my parents dog.
We are looking forward to when daddy gets to come down and join us we are hoping the next few weeks go by quickly.

Yesterday was Christians class pre-k graduation I to be there but felt my place was with the family. I hope that all of the kids and staff had a good day and thank you for honoring our sweet Christian and his little friend.

Will update again soon.