Breaking the rules!

We were told Christian should not go swimming with the trach, but we wanted him to enjoy the summer like all the other little ones, He had so much fun just sitting there and moving his hand and leg. Thats all that matters to us.

pics

I thought I would add these pictures of Christian trying to crawl over the weekend. He still is not able to be on his hands and knees but he figured out another way he could do it.

Few updates

This past week Christian has started all of his therapies and the teacher, so far things have are going well. PT brought a walker type piece of equipment to help him walk on his own maybe that will make him feel more independent.

We did take him to the doctor Thursday he was running slight fevers and throwing up his feeds turns out he has an infection so she put him on strong antibiotics. He will be on this for 10 days.

Wednesday we took him to see a plastic surgeon about his facial palsy. He told us that he feels Christian has tone in his face and not to do the 7Th/12Th nerve graft. And that we don't need to rush on this for he is still young and growing. He did mention doing a muscle procedure or a sling procedure in the far out future. Our NS here and a doctor in Tn. are both now saying its to late to do the 7Th/12Th surgery. So now we are stuck with what are we suppose to do, so we are looking for another doctor to get there opinion. The plastic surgeon also mentioned getting him tested to see if there is anything working in his face so this is something else we will look into.
We just want whats best for Christian and wish our doctor wouldn't have told us to wait back in march. We will update more as we figure out things.

Therapy updates

Christian will be starting his summer sessions starting Monday the 9th. He will get a teacher, Speech, OT and Pt so our week will be busy. We are hoping once he starts therapy that his walking will take off and that he will be able to use his hand. I will update sometime after he starts and let you know how it is going.