Celebration Pics

Few updates

First off today is Christians 1year cancer free anniversary YEAH!!!!!!!!!!!! it has been a rough road the past few months but we have him and are enjoying every second that we do.

Second we will be getting a nurse she actually will be starting today so we will see how this all plays out.

Some Updates

First off he went to the ENT yesterday and they did not say to much really just checked his site and said come back in September for a scoping to see how the cords are doing. And if they are working and he is doing better then we can start putting smaller trachs in and begin the process of taking it out all together!

For Ms Fawn and Mr Robert we thought you would like to know that he is now walking with our help but he wants to do it and that is great news for us!

More great news today he said mom! yes thats right he talked, he said dad and nan and tried to say Carter. So maybe this is the start of it all and he will be talking in no time. He still will not wear the speaking valve but if can talk with out then thats fine with us.

Relay Pictures

Here we are at the Relay for Life walk. It was an experience I will never forget. Here are a few of us walking the survivors lap, Christian holding on of his luminaria bags and then all of us as we were leaving.

Celebration

We will be having a little gathering on June 20th @ 6pm to celebrate Christians 1 year cancer free date. If you are in the area please stop by and enjoy the evening with us.

appointment update

Today was a hard day for Christian had had his appointments with his Onc. Dr and then saw Neurosurgery N.P. to remove the stitches. Some of them had grown over and was stuck so she had to pull harder to remove them. Meanwhile Christian is very upset it was all I could do to hold him still daddy had to help as well and hold his head. She did leave one stitch for it would not come out so we have to clean 3 times a day and it should losen and come out easy.
We have a follow up in two weeks to check the wound site itself.

On the other hand had an appointment yesterday to start putting together his wheel chair information. He was measured and we discussed what would be best for him. So hopefully now things will move a little faster.

He will also be doing summer sessions at home for school he will recieve speech, OT and PT and a teacher some will be 3times a week and others 2 times.

We are also going to the relay for life tomorrow evening so hopefully I will be able to post a few pics over the weekend.

Picc line

Well this morning Christian's line started leaking so we called the line nurse she came and looked at it but we had to go to the ER to have a new one put in. To our surprise it was not an all day wait we were in and out with in 3 hours. So hopefully this one will last until his meds are finished on the 15th.