ENT Appt.

Sorry its taken a few days to update the news things have been a little crazy around here. We did get some good news, the Dr wants to down size his trach to a 3.5 and if he does OK with that then it could be out by WINTER!!!! We were happy to hear this some good news is what we needed.
He had a fever and started vomiting the other evening we aren't sure if its from the flu shot he had gotten that day or if he had caught something from somewhere. He is feeling better today though.
We will also start his Chemo Monday evening so at least we will feel like we are doing something to help it. I pray that it does not make him to sick and that he can stay in school and do anything else he wants to do.
Please keep another ependy child in Ur prayers for they are going through a recurrence now as well.
Thanks for the prayers
Hugs to all!

more bday pics

Here is Carter during present opening, he was not into it that at all he just wanted to play.
And Christian was throwing the clothes to daddy and was waiting for the good stuff. I love the pic of him hugging his car pillow.

Bday pics

Christian trying not to fly away and Carter doesnt want to get out of the swing.

Our only option

Hi everyone, We did hear more news on Friday but because of celebrating the boys b-days I decided to wait to update. Dr. Merchant called us and said he would not do radiation on Christian for he feels that he would not be able to handle it, coming from a doctor that does take risk with that it did make us feel defeated in away. He feels that Christian should do chemo to hopefully hold it off, stabilize it. If that doesn't work and it continues to grow then we would change up our chemo drugs. He will have MRI's to montior the chemo.
He said that maybe in 6 to 8 months if he was having symptoms and was stable himself then he might consider doing spine radiation but that sounded like a big might. This is not the news we were hoping for but it is what we have so now we have to make the best of it.
Everyday we have with Christian is a blessing and I only hope and pray that we can have many more days with him.
Thank you again for all your prayers.


Please remember a friend of ours Alex he only has a matter of time now so please keep him and his family in your prayers.

All of our Options

These are the options we have been given, Chemo, radiation or having both at the same time. This is what we have gotten from the docs here in buffalo.

We have heard from Memphis and the dr. feels we should do chemo to buy some time until Christian gets older and then do more radiation.

So now the doctors will discuss what drugs they should use and then we need to decide what we want to do as well. Thanks for the prayers please keep them coming.

Spinal Tap Results

The results came back today and it is a reoccurence in his spine. We meet with the docs tom. afternoon to discuss our options.

some good news

I thought I would share what a good day we have had today, Christian has been on the floor rolling all over the place and trying to crawl. He has also learned that he can sit up all by hisself is laying on his stomach. So now he wants to do it all the time. With everything else that is going on this was a much needed day to see him having such a good time and knowing he can do things on his own. Again thanks for all your prayers.

Spinal Tap

spinal tap is this Friday at 12:30 so we should know results next week.

MRI Results

We got the call today, the spot in his head has grown and now they are worried about the spine she said there was some haziness at the very bottom of the spine so they want to do another spinal tap with in the next week and half. This was not the news we were hoping for so all we can do now is pray that the spine will turn out to be alright. Please keep the prayers going for Christian and the family. Thanks

MRI Day

He had his scan today what we thought was just going to a brain scan ended up being brain and spine so it took over two hours. We do not know anything yet we should at some point next week and thats when I will update y'all on that. Thanks for all the prayers.

On another note he has been throwing up over the past month now either right after he eats or during. He was put on some medicine but that didnt seem to be working so he is now on another one and hopefully that will work and its NOT a sign of the tumor being back.

First Day of School

Here are a few pics of Christian waiting on the school bus. He was actually ok with getting on today, he was a little scared because he had to get on backwards with his chair but hopefuly in time he will get use to that and things will go well.