Hi everyone, We did hear more news on Friday but because of celebrating the boys b-days I decided to wait to update. Dr. Merchant called us and said he would not do radiation on Christian for he feels that he would not be able to handle it, coming from a doctor that does take risk with that it did make us feel defeated in away. He feels that Christian should do chemo to hopefully hold it off, stabilize it. If that doesn't work and it continues to grow then we would change up our chemo drugs. He will have MRI's to montior the chemo.
He said that maybe in 6 to 8 months if he was having symptoms and was stable himself then he might consider doing spine radiation but that sounded like a big might. This is not the news we were hoping for but it is what we have so now we have to make the best of it.
Everyday we have with Christian is a blessing and I only hope and pray that we can have many more days with him.
Thank you again for all your prayers.
Please remember a friend of ours Alex he only has a matter of time now so please keep him and his family in your prayers.
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6 comments:
Christian and family,
We found Christian's site through Johnny Sileno's site. We met them in Memphis when my daughter, Kylee, was out for a check-up. Kylee has an ependymoma too. She had a recurrance two years ago. She has her two year check-up in Ocotber. We will add Christian to our nightly prayers. We will ask God to have the chemo help his tumor stabalize or shink until he is old enough to have surgery and undergo radiation again. I am sorry you are all going through this again.
God Bless.
Amy - Stay focused and positive and we will stay strong with prayers for Christian to accept the chemo without any problems - Love and prayers, Kathy (Johnny's grandma)
I'm sorry to hear that Christian has to go thru more chemo. Poor little guy:( I will pray that it goes easily for him and that the meds knock out that nasty tumor once and for all.
Warm hugs,
Candy
Amy my thoughts are always with Christian and your family. My prayers are with you.
Jennine keeps us posted on Christian. I will keep you all in my prayers. I will also keep Alex and his family in my prayers.
The pictures are great. Thank you for sharing.
Marilyn
(Johnnys aunt)
Another site has been praying for Christian and your family...your blog address was posted there.
You are all in my daily prayers..sending love and light your way. The roller coaster of good days /bad days seem never ending...always remember what ever you are feeling is normal and you are okay...Christian is so lucky to have you.
Blessings and Angel kisses...praying for a good day today
Neicey
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